Written By: Adam Decide, Affected person Advocate, Writer & Web site FounderPublished: August 1, 2023
It’s my favourite a part of working this web site… Listening to from all of the great sufferers in our neighborhood! For instance, I simply acquired a incredible electronic mail from Michele Marcus after our latest webinar.
Michele Marcus (Coronary heart Valve Affected person)
What Did Michele Say?
Right here’s what Michele, who’s from Florida, wrote to me:
Adam, the stay webinar was extraordinary! I like articulate, clever people 😀 (together with you!) . The knowledge was sensible, technical, informative and related. I nearly felt just like the poster baby! And, so properly offered together with the diagrams and movies. I really feel lucky to have discovered and be a part of this group you created. Thanks for that.
My scenario was much like the urologist, who was the affected person featured on the webinar. I used to be following my valve for a few years, realizing it was nearly actually that it was bicuspid. I’ve even examine how bicuspid valves kind in utero, I do a number of analysis! Fyi, I’m a 66-year-old retired bodily training instructor.
Michele at Pickle Ball After Coronary heart Surgical procedure
4 years in the past, my heart specialist wished me have the surgical procedure. My stenosis was nonetheless within the reasonable vary and I used to be asymptomatic. After assembly with the surgeon, I turned disenchanted and selected to not. I switched medical doctors and went to somebody who noticed how nice all my different numbers had been and believed in “watchful ready”. We did echocardiograms each six months and when that quantity went into the extreme vary… We acted. I used to be nonetheless asymptomatic. It was nearly 3 years later.
Then issues turned attention-grabbing! After seeing my echo in 3D, my surgeon mentioned… TAVR. I had the fused bicuspid valve and it was very calcified. I used to be beneath the impression that we’d be doing open-heart surgical procedure due to my age. I used to be so thrilled. I knew concerning the distinction in restoration and, after all, the scar. There have been two very particular causes that knowledgeable his choice:
He would truly be capable to get a much bigger valve in with TAVR. I’ve the Edwards Lifesciences SAPIEN 3 Extremely 9750TFX, measurement is 23 MM.I had a lot calcification on the one facet that the surgeon thought stitching a valve in could be problematic.
And right here I’m, again to my Pickle Ball and Tennis, with nary a thought (which is what Dr. Johnston wished for us!) about my new valve!
Thanks for all you do!Michele Marcus