Pricey associates,
That is an thrilling week for the pulmonary hypertension neighborhood. Many people, together with your entire Pulmonary Hypertension Affiliation workforce, are in Indianapolis for PHA 2024 Worldwide PH Convention and Scientific Periods.
We welcome these of you right here in individual and hope these of you who couldn’t attend will be part of us at a future PHA occasion. PHA conferences, workshops, fundraisers and the PHPN Symposium are all methods to fulfill individuals with shared expertise, find out about current developments in PH, and proceed to construct this sturdy, proud and supportive neighborhood. As our the convention theme states, we’re “Stronger Collectively.”
Whether or not you’re with us in Indianapolis this weekend, or studying PHA Information from your own home, clinic or lab, now we have a lot to have a good time. That is our fifteenth convention since 1994. Our first, in 1994 exterior of Atlanta, convention attracted 68 individuals with PH and 32 well being care professionals. One other 100 or so have been members of the family, associates and caregivers. This yr, we anticipate over 1,000 attendees
In these early years, many individuals with PH have been seeking to meet others with their uncommon and then-unheard-of situation. Well being care professionals needed to share data and study from their friends. Though many PHA 2024 attendees have attended earlier PHA occasions, this convention may have newcomers assembly others with PH for the primary time. Please welcome them, make them really feel a part of our neighborhood and provide them the identical assist and connections you discovered at your first PHA occasion.
Whereas we’re in Indianapolis, we’ll be launching two necessary sources: new brochures and a podcast.
For the primary time, we’ve printed all 15 of PH& brochures in Spanish to assist individuals with related situations study the dangers of PH. We’ve additionally up to date the content material and design of a number of English-language brochures. You will discover these on the PHA Sales space (No. 300) at PHA 2024 or order/obtain free copies from our web site after the convention.
Most excitingly, now we have a brand new useful resource you may take pleasure in anyplace: PH Insights, our new podcast. The podcast goals to amplify the voices of the PH neighborhood by way of conversations with sufferers, well being care professionals and others. We plan to launch new episodes on the second and fourth Wednesday of every month. You may subscribe by way of the platform of your alternative.
Wherever you might be this week, be part of us for our August advocacy problem. Please ship a message to Congress in assist of the Supplemental Oxygen Entry Reform Act. Our objective is to ship 800 messages by the top of this month. It takes simply two minutes to fill out our message template and assist us meet this objective.
Over the following 5 days, we’ll be sharing information and images from PHA 2024 on our social media channels. Please like and share our posts whether or not you’re with us in individual or in spirit.
As I at all times, I stay up for listening to from you.
With gratitude and respect,
Matt J. Granato, LL.M., MBA (he/him)President & CEO