The newest subject of Pathlight journal focuses on how the PH neighborhood is stronger collectively. In our cowl story, “Transplant Recipient Celebrates Put up-PH Life,” PHA board member Diane Ramirez shares how she is flourishing with new lungs and a coronary heart. After 36 years with pulmonary hypertension, she’s getting used to post-transplant life and stays dedicated to serving the PH neighborhood.
“I could not have PH anymore, however I’m nonetheless right here,” Ramirez says. “I nonetheless do advocacy and consciousness for PH, and I’ve no intention of stopping.”
Sidebars discover what sufferers ought to find out about transplant and lung transplant inequalities.
Learn on to find out about different highlights on this subject of the Pulmonary Hypertension Affiliation’s quarterly print journal:
Volunteer welcomes PHA 2024 attendees
This subject’s volunteer highlight options Michelle Reller of Huntington, Indiana. Reller, 54, is a longtime PHA assist group chief, who at present heads the Kentuckiana PH Warriors. Reller additionally was a member of the Welcome Subcommittee for PHA 2024 Worldwide PH Convention and Scientific Periods. Identified with PH in 2009, Reller has handled many diseases since she was 10, when she had a pituitary mind tumor and her pituitary gland eliminated.
Neighborhood workshop evokes training, hope and assist
Over a 12 months in the past, Claire Champion transitioned from being an ICU nurse to a nurse practitioner at Texas Youngsters’s Hospital. To construct neighborhood, higher perceive her sufferers’ wants and community with different professionals, she attended the PHA Connects: PH Neighborhood workshop in Houston. Champion was among the many 90 individuals who attended the April 6 workshop, the place regional specialists share data developments in PH analysis and illness administration.
How advocacy helps sufferers and households
Licensed scientific social employee Marina Salazar shares her story for this subject’s advocacy profile. Salazar leads the College of California-San Francisco Medical Middle PHA assist group. She discusses why she participated in PHA’s Might advocacy marketing campaign to mark World Pulmonary Hypertension Day.
Learn these and different inspiring tales in Pathlight, an unique good thing about Pulmonary Hypertension Affiliation membership. In your personal Pathlight subscription, be part of PHA or renew your membership.